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Cerebral Palsy and ageing in your late 20’s
I know what you’re thinking, your late 20’s is young! I agree with you. Yet I’m 27 years old and I’m starting to feel the premature ageing associated with cerebral palsy — and I’m not alone in that.
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Cerebral palsy and winter: “Surely it wasn’t this bad last year…”
As the cold weather creeps up on us, pain levels start to rise. My muscles begin to contract and ache in a way that’s persistent and loud. I know I say it every year, but surely it wasn’t this bad last year.
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Wearing AFO splints as an adult with cerebral palsy
I have mild cerebral palsy and I’ve worn AFO splints on and off my whole life. I initially wore 1 AFO on my left leg as a child. After a deterioration in my walking, I started to wear 2 AFO splints as a young adult. Despite my walking being unrecognisable from when I got AFO splints again, I continue to wear them.
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Swimming when you’re a disabled adult
I certainly would not class myself as a sporty person, but swimming is something I’ve always enjoyed. Despite this, it’s not something I did regularly. However, towards the end of the first lockdown, the swimming pools opened up again. It felt like a chance.
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Interviewing Neuro Heroes’ cerebral palsy specialist
I appreciate the range of experiences that people can have when trying to access healthcare. Having cerebral palsy as an adult can feel like unknown territory, yet I felt Bex had a lot of wisdom to share. It can be so difficult to find a physiotherapist who specialises in cerebral palsy. As a result, I was so excited to interview Bex. I wanted to ask her all about the CP Empower workshop and how she came to specialise in CP.
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Cerebral Palsy and Exercise: Reviewing CP Empower by Neuro Heroes
Cerebral palsy (CP) is a lifelong disability that is caused by brain damage around the time of birth. Despite the brain damage staying the same, it’s common to experience a deterioration of mobility during adulthood. This is often due to the extra strain on our joints and muscles, a secondary affect of mobilising with cerebral palsy. The deterioration and changes can be explained by post-impairment syndrome. Despite adults with CP regularly experiencing higher levels of pain and fatigue, research and knowledge of post-impairment syndrome is still relatively new. Due to the impact of post-impairment and cerebral palsy, I was very intrigued when I came across Neuro Heroes. Particularly their CP Empower…
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Cerebral Palsy and managing pain
Over the last few years I’ve tried various ways to control pain levels, all with varying degrees of success. However, it’s probably one of the main questions that I get asked. Developing a pain management strategy can take years of trial and error, with everyone responding differently. Due to this, I asked the cerebral palsy community what they found helpful. I hope this helps to make things less painful!
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Shoes and splints: A guide to find footwear for AFO’s
Today is World CP Day 2020, so I’m sending solidarity to everyone who wears AFO splints and all those who are part of the search to find shoes that fit. This year World CP Day are wanting people to #CPMakeYourMark and share solutions they’ve discovered. As a result, I’ve put together all the tips and tricks I’ve learnt over the years so that you can find shoes with ease.
